DOCUMENTARY RESOURCES

Lupus may be associated with a higher cardiovascular risk (risk of heart or artery disease) than in the general population. This degree of risk varies among individuals with lupus and depends on the level of disease activity, the presence of kidney involvement, the treatments used for lupus, and the presence of classic cardiovascular risk factors (high blood pressure, type 2 diabetes, etc.). Cardiovascular prevention is therefore part of the overall monitoring of people with

People with lupus may have an increased risk of certain infections. This risk may be related to the disease itself, but also to certain treatments that affect the immune system, including corticosteroids and immunosuppressants. Prevention and early detection of infections are therefore part of medical monitoring. Why might the risk of infection be increased? Lupus causes a dysfunction of the immune system. Furthermore, some medications used to control the disease reduce the a

Living with lupus does not necessarily prevent one from pursuing a professional activity, studies or an active social life. However, the consequences of the disease vary greatly from person to person. Fatigue, pain, flare-ups, or certain organ damage may sometimes require a temporary or permanent adjustment to daily routines. To continue one's professional activity When the disease is stable, many people with lupus can continue their professional activities normally. During a

Diet contributes to the overall health of people living with lupus, but it does not replace the treatments prescribed to control the disease. There is no single diet suitable for everyone with lupus. Recommendations must take into account the individual's health status, current treatments, and any associated conditions. Prioritize a balanced and varied diet In the absence of a medical condition requiring specific recommendations, a varied and balanced diet is advised. It is b

Fatigue is a common symptom of lupus. It can sometimes be severe and have repercussions on daily, professional, family and social life. It is not always simply fatigue after exertion: in some people, it can persist despite rest or their to give the impression of having less energy to perform usual activities. Fatigue can have several causes. In a person with lupus, fatigue can be linked to various factors. It can accompany a period of disease flare-up, but it can also have ot

Kidney involvement is one of the possible complications of systemic lupus erythematosus. Called lupus nephritis, it requires close monitoring because it can sometimes develop without obvious signs. This sheet complements the general information presented in the topic "Manifestations of lupus", explaining more precisely how kidney involvement is detected, assessed and monitored. How is kidney function monitored? Monitoring is based primarily on blood and urine tests, carried o

Having lupus does not necessarily prevent you from having a child. Thanks to a better understanding of the disease, appropriate treatments, and specialized monitoring, many women with lupus can now carry a pregnancy to term. However, a pregnancy during lupus requires special preparation and medical monitoring in order to best protect the health of the mother and the fetus. Preparing for pregnancy When a woman with lupus wishes to have a child, it is important to discuss this

How is lupus diagnosed? The symptoms presented by patients are often only indicative. The diagnosis of lupus first requires: an analysis by the doctor of the symptoms presented by the person a comprehensive clinical examination analyzing the characteristics of each symptom and looking for associated symptoms various biological or complementary tests whose objective will be first to confirm the diagnosis, but also to monitor or search for other conditions related to lupus (inc

Le lupus, de son nom complet Lupus érythémateux systémique (LES), est une maladie auto-immune chronique dont les manifestations peuvent être très différentes d'une personne à l'autre.

Lupus is a chronic disease for which there is currently no cure. However, available treatments can control disease activity, treat flare-ups, prevent relapses, and reduce the risk of complications (and treat them if they do occur). The objectives of the treatment Treat lupus flare-ups and any complications (due to the disease or to treatment prescribed during a previous flare-up); To achieve sometimes very long remissions and prevent relapses; To preserve quality of life and

Living with lupus involves learning, with the help of professionals in the field of... health (during Therapeutic Patient Education - TPE sessions), to know their illness and to recognize situations likely to promote certain manifestations or complications. In addition to prescribed treatments, several systematic measures can help to preserve the patient's health and quality of life on a daily basis. Protect yourself from the sun Ultraviolet rays can promote or worsen certain

Salane FAYE Ambassadrice de l’éducation et de la sensibilisation Enseignante engagée et passionnée par la transmission des savoirs, Salane Faye consacre sa carrière à l’accompagnement et au développement des jeunes. Après plusieurs années auprès de la petite enfance, elle enseigne aujourd’hui auprès d’élèves du secondaire, mettant chaque jour ses compétences pédagogiques et humaines au service de leur réussite. Au quotidien, elle accorde une importance particulière à

Pr. Souhaibou NDONGO Coordinateur du comité scientifique Professeur titulaire à la Faculté de Médecine de l'Université Cheikh Anta Diop de Dakar, le Professeur Souhaibou NDONGO est médecin interniste et rhumatologue. Depuis 2016, il dirige le service de Médecine Interne/Rhumatologie du Centre Hospitalier National de Dalal Jamm à Dakar. PARCOURS PROFESSIONNEL Ancien Interne des hôpitaux de Dakar, il a poursuivi son parcours hospitalo-universitaire...

Breaking the silence surrounding a disease with a thousand faces A disease that hides Lupus is an autoimmune disease: the immune system, instead of protecting the body, attacks its own cells and tissues. It can affect the skin, joints, kidneys, heart, lungs, or nervous system. Its manifestations are so varied that it is often nicknamed "the disease with a thousand faces". Its signs are numerous and subtle: persistent fatigue, joint pain that shifts from day to day, hair loss,

Mohamadou Idi DJALLAMI Ambassador for financial engineering and development Mohamadou Idi DJALLAMI is a renowned Nigerien expert in financial engineering, development finance, and investment structuring, with over twenty years of experience in the banking, strategic consulting, and financial institution management sectors. Throughout his various roles, he has distinguished himself by his ability to structure innovative financing mechanisms, mobilize resources on a large scale

Mame Diara FAYE Ambassador for international communication With over 15 years of experience in human resources in Canada, within international environments, she has developed solid expertise in supporting people, managing career paths and adapting to multicultural contexts. Recognized for her rigor, relational sensitivity and awareness of the realities on the ground, she is distinguished by her kindness, based on trust, active listening and individualized support, with partic

Sarah NAANY Ambassador for human support and solidarity Sarah Naany, director and founder of Présence et Soleil, is a woman of action, deeply focused on people, listening and supporting individuals in times when life becomes more fragile. From a young age, she has paid particular attention to vulnerable people, families in distress, and those facing illness, isolation, or difficult periods of transition. His commitment is based on a strong conviction: every suffering deserves

Marie GAYE, Honorary Advisor With a rich and dedicated background, I had the opportunity to work as an executive assistant in Senegal and then in Niger, within a hospital environment. There, I worked closely with medical teams, developing rigor, organizational skills, and a sense of responsibility. A deep commitment Driven by strong values, I have, throughout my life, supported and inspired those around me. I have contributed, discreetly and profoundly, to their successes. Ea

Ngoma Joëlle SY Ambassador of kindness and support A professional executive assistant, she operates with seriousness, discretion and a sense of responsibility in administrative management and daily organization. Throughout her career, she has developed human qualities based on listening, patience, and attentiveness to others. Deeply sensitive to the hardships faced by people living with lupus, she places great importance on kindness, respect, and moral support. Her A human ap

The problem of autoimmune diseases in Senegal Senegal faces a double burden: communicable diseases, which are increasingly prevalent. in better controlled areas, and non-communicable diseases (NCDs). The latter represent a high cost for patients, their families, and society. This is why Senegal has integrated them into the fight against disease and is striving to organize their management at the national level. However, another group of diseases, autoimmune diseases, is not y

Dr. Rashid ALHASSAN Ambassador for International Medical Relations Dr. Rashid Alhassan is the Managing Director of Nexus Global Services Ltd., a medical facilitation company that connects patients with top-tier healthcare facilities internationally. After completing his medical studies in Turkey, he quickly became aware of the difficulties in accessing quality healthcare in many parts of Africa. Based on this observation, he founded Nexus Global Services Ltd., which now opera

Mamadou MOMA BA International Ambassador for Partnerships and Strategic Relations Mamadou MOMA BA is a man of commitment, whose career is guided by a deep conviction: to put his energy, his network and his skills at the service of humanity and causes that matter. Driven by values of justice, dignity, solidarity and sharing, he has gradually built a career entirely focused on social, health and humanitarian action. Mamadou MOMA BA embodies a generation of African leaders capab

My name is Debo, I am sick and I feel alone! Author: Professor Souhaibou NDONGO To learn more: Discover the work of Professor Souhaibou NDONGO, dedicated to the experiences of people suffering from lupus and autoimmune diseases. Some key points : • An immersion into the lived experience of a person with systemic lupus. • A human perspective on loneliness, diagnostic uncertainty, and the healthcare journey. • A book intended for patients, their relatives and healthcare profess

Lupus: 100 questions to better manage the disease Author: Professor Zahir Amoura and his collaborators To learn more: Discover the work of Professor Zahir Amoura and his collaborators , dedicated to the experiences of people with Lupus and autoimmune diseases. This reference work answers, in clear and accessible language, the main questions that people living with lupus and their loved ones ask. Written by recognized specialists in autoimmune diseases, it is a valuable resour

Khalifa Ababacar SY NDIAYE Ambassador for Partnerships and Development A Senegalese finance and development professional, Khalifa Ababacar Sy Ndiaye has been using his expertise in the banking and financial sectors for over fifteen years to support projects with a strong economic and social impact. He currently serves as Head of the Commercial Department at La Banque Agricole. He is also the Founder and Principal Consultant of KASCO (a consulting and expertise firm specializi

Professor Saïd Norou DIOP Vice President & Medical Advisor The TAHIRAH CARE Association benefits from the commitment and expertise of Professor Saïd Norou DIOP, a renowned internist and international lecturer, whose career is part of a dynamic of medical cooperation between France and Senegal, with a wider opening onto the African continent. PROFESSIONAL CAREER Former Head of Service at the National Diabetes Centre for two decades (1997–2017), Professor DIOP dedicated his car

Djilène FAYE President & Founder of TAHIRAH CARE After an initial entrepreneurial experience in the hairdressing and beauty sector, complemented by training in France and the United States, Djilène Faye gradually oriented her career towards coordination and administrative management roles. She notably worked within the EDF group, then briefly at UNESCO, before serving as assistant to the Minister-Counselor, Head of the Economic Office at the Senegalese Embassy in Paris. In th