OUR ACTIONS
Accompaniement
individuals and families
To provide structured and caring support to people living with the disease and their loved ones.
To direct people towards appropriate healthcare professionals and facilities, and to support those concerned in organizing their care pathway.
Maintaining a comforting presence, particularly in situations of isolation or during hospitalization, in France as well as in partner countries, according to the identified needs.
Awareness and information
To provide clear and accessible guidelines for better understanding autoimmune diseases and to promote quality medical follow-up, taking into account local realities and cultural contexts.
Inform and raise awareness throughout the healthcare journey, addressing specific situations, including maternity plans or pregnancy monitoring.
Helping to recognize warning signs and encouraging prompt consultation with qualified professionals.
Prevention and health education
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Informing to better protect, by providing clear guidelines on the prevention of autoimmune diseases and on the importance of regular medical follow-up.
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Raising awareness of the risks associated with self-medication and certain unregulated practices, particularly in the area of traditional medicine.
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Promoting good adherence to treatments is essential to prevent complications and stabilize the disease.
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Encourage healthy behaviors by highlighting risk factors and the importance of a healthy lifestyle.
Collective actions and partnerships
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Participate in meetings, conferences and events related to autoimmune diseases, in France, Senegal and other partner countries, in order to increase the visibility and understanding of the disease.
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Developing links with healthcare professionals, associations and institutions, in France and internationally, to facilitate networking, sharing of expertise and access to appropriate solutions.
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Identify the needs of the people concerned and their families and better adapt the actions and responses offered.
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Organize solidarity actions and times for exchange, particularly online, to inform, support and maintain the link with the community.
The association is committed to a collaborative approach with key stakeholders, particularly in line with the recommendations of the national FAI²R network, including the Pitié-Salpêtrière reference center (Internal Medicine 2 – E3M) and the constituent center in Montpellier. It also develops collaborations with international partners.
Overall well-being and self-esteem
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To support the person in their entirety, beyond the illness, taking into account their physical, emotional and social balance.
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Promoting self-esteem by offering tailored solutions, such as image consulting, hair solutions (medical wigs, prostheses) and body-friendly approaches.
DID YOU KNOW?
In France, in the event of hair loss related to an illness or its treatment, a hair prosthesis may be covered by Health Insurance, under certain conditions.
Prescription and reimbursement procedures vary depending on the situation and the type of prosthesis chosen .
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Encourage self-expression, listening and psychological support when needed, in order to strengthen self-confidence and the ability to cope with the illness.
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Supporting a holistic approach to health, integrating mental well-being, adapted physical activity and social connections, with attention to the needs and realities of each individual.
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